Maximising data value and avoiding data waste: A validation study in stroke research

MF Kilkenny; J Kim; NE Andrew; V Sundararajan; AG Thrift; JM Katzenellenbogen; F Flack; M Gattellari; JH Boyd; P Anderson; N Lannin; M Sipthorp; Y Chen; T Johnston; CS Anderson; S Middleton; GA Donnan; DA Cadilhac

Journal article

Maximising data value and avoiding data waste: A validation study in stroke research

MF Kilkenny, J Kim, NE Andrew, V Sundararajan, AG Thrift, JM Katzenellenbogen, F Flack, M Gattellari, JH Boyd, P Anderson, N Lannin, M Sipthorp, Y Chen, T Johnston, CS Anderson, S Middleton, GA Donnan, DA Cadilhac

Medical Journal of Australia | AUSTRALASIAN MED PUBL CO LTD | Published : 2019

DOI: 10.5694/mja2.12029

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Abstract

Objectives: To determine the feasibility of linking data from the Australian Stroke Clinical Registry (AuSCR), the National Death Index (NDI), and state-managed databases for hospital admissions and emergency presentations; to evaluate data completeness and concordance between datasets for common variables. Design, setting, participants: Cohort design; probabilistic/ deterministic data linkage of merged records for patients treated in hospital for stroke or transient ischaemic attack from New South Wales, Queensland, Victoria, and Western Australia. Main outcome measures: Descriptive statistics for data matching success; concordance of demographic variables common to linked databases; sensit..

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University of Melbourne Researchers

Vijaya Sundararajan Author

Geoffrey Donnan Author

Dominique Cadilhac Author

Related Projects (1)

STROKE 123:A COLLABORATIVE NATIONAL EFFORT TO MONITOR PROMOTE AND IMPROVE THE QUALITY OF STROKE CARE IN HOSPITALS AND PATIENT OUTCOMES

Stroke is a major public health issue in Australia. This Better Health Initiative partnership project is designed to rigorously evaluate a m..

Grants

Awarded by Heart Foundation

Funding Acknowledgements

We acknowledge members of the Australian Stroke Clinical Registry (AuSCR) Steering Committee, staff from the George Institute for Global Health, and the Florey Institute of Neuroscience and Mental Health who manage the AuSCR (Supporting Information). We also thank the hospital clinicians (Supporting Information) and patients who contribute data to AuSCR. We acknowledge the data linkage teams in New South Wales, Queensland, Victoria and Western Australia, the Population Health Research Network, and the Centre for Data Linkage. The following authors receive Research Fellowship support from the National Health and Medical Research Council: Monique Kilkenny (1109426), Nadine Andrew (1072053), Amanda Thrift (1042600), Natasha Lannin (1112158), and Dominique Cadilhac (1063761); Judith Katzenellenbogen received research fellowship support from the Heart Foundation (100807). The AuSCR is supported by the Florey Institute of Neuroscience and Mental Health, the National Stroke Foundation, consumer and industry donations, and the NHMRC Stroke123 Partnership Grant (1034415).